Kelly Moes

Intracranial Hypertension | Disability Studies | Medical Sociology

Intracranial Hypertension Projects


Overview

Intracranial Hypertension (IH) is an uncommon neurological and metabolic chronic illness-disability that remains significantly under-represented in qualitative and critical social science research.

This research builds on my doctoral work to develop a sustained body of scholarship that meaningfully engages with the IH community of practice to explore the lived and socio-relational experience of IH. 

Monograph

Life with Intracranial Hypertension: Doing, Being and Knowing in Chronic Illness [working title] 
Forthcoming, 2028 (Peter Lang Publishers, Medical Humanities: Criticism and Creativity series)

This sole-authored monograph consolidates and extends my doctoral research, developing its theoretical and empirical reach within Health Humanities and the sociology of chronic illness.

The monograph draws on the doctoral dataset of 563 participants across 37 countries to examine the doing, being, and knowing of life with IH, and what facet methodology makes possible as a framework for holding multiple perspectives on complex chronic illness experience together. 

Further grounding this work in the lived experience of IH, the monograph will incorproate first-person narrative contributions from individuals with IH from around the world. 

Evolving Perspectives in IH

Idiopathic Intracranial Hypertension: Evolving Neurometabolic Concepts and Implications for Clinical Pathways
Authors: Dr Alexander Lawson Maclean; Dr Kelly Moes
(currently under review)

This collaborative paper examines developing neurometabolic understandings of IH and their implications for clinical management, bringing together qualitative and clinical perspectives on IH care pathways. 

Publications


"Just Lose Weight": Weight-based Medical Bias in Intracranial Hypertension


Kelly Moes

The 11th Annual Weight Stigma Conference: From Weight Stigma to Size and Weight Inclusiveness and Liberation, , Frontiers in Psychiatry, vol. 17, 2026, p. 1785195


“My Health Sucked the Future Right Out of Me”: Time and Temporality in Life with Intracranial Hypertension


Kelly Moes

Timescapes of Health, Illness and Care, Dr. Katherine Kenny, Dr. Mia Harrison, Dr. Anthony K.J. Smith, Timescapes of Health, Illness and Care, chapter 11, Springer Nature, Singapore, 2025


"We all don't fit inside the same box": When Men Have a 'Women's Disease' [poster]


Kelly Moes

Gender Research Network Showcase, Curtin University, 2025


(Dis)locatedness: Reimagining digital chronic illness social connections as a Community of Practice


Kelly Moes

The Australian Sociology Association Conference, 2024 Nov


Expressing the IH Lived Experience through Images


Kelly Moes

Borderline Bodies, Health and Medical Humanities Symposium, Australian National University, 2024 Jun